Privacy
Last updated November 5, 2026
The short version: Open Chiari doesn't know who you are, doesn't use cookies, and never collects health information.
What is counted
To show the totals on the Impact page, the site counts visits and a few actions: opening the 3D model, making an Explain It link, and opening a study listing. Counting uses Open Chiari's own counter, which uses no cookies and doesn't build a profile of you. Your browser sends only the name of the action, and the counter adds 1 to a total. It doesn't keep your address, device, browser, country, the page you came from, or the link. When the 3D model is shown on another website, that website's address is noted, so the Impact page can count the sites that use it.
What is never collected
- Your identity
- No accounts, sign-ins, names or email addresses.
- Explain It notes
- Your note goes in the message you send, not in the link. The link holds only the chosen view, after the #. Browsers don't send that part to our server, and the counter never receives it.
- Visit prep questions
- Built and printed entirely in your browser. Nothing you tick or type leaves your device.
- Your location
- The "Near" box on Research studies sorts the list on your device and is never sent.
- Your camera
- "See it in your room" uses your phone's camera on the phone itself. The picture never leaves your device, and the site never sees it.
- Health information
- None, anywhere on the site.
Saved on your device
Calm mode, Dim mode and your language choice are remembered in your own browser so they stay on next time. So the site also works without a signal, your browser keeps a copy of its pages and files; nothing you type or choose is in it. Clearing your browser data removes all of this. None of it is ever sent to the site.
Outside services
- Hosting: Cloudflare Pages, which handles the site's traffic like any web host.
- Fonts and 3D files: served from Open Chiari itself, not from Google or other companies.
- Research studies: collected from ClinicalTrials.gov, run by the U.S. National Library of Medicine, once a day by the site, so your browser never contacts them.
- Links out: donate pages, study listings and other sites have their own privacy policies.
If you email [email protected], your message is used only to reply and isn't shared. Please don't include medical details.
Changes
If this policy changes, the date at the top changes too, and anything significant is noted on the home page for 30 days.